Hi everyone, We are Kayleigh and Luke. Proud parents of Bryan and our 2 other children. Bryan has a very rare condition called Sidreoblastic Anaemia. Bryan needs a bone marrow transplant and on the 28th July after years of waiting she will be admitted for this procedure. Our son, Bryan’s brother LJ is going to be her donor.When Bryan was just 18 months old our world was turned upside down. Our health visitor mentioned how he looked quite orange and that he would need to have a blood test.After multiple appointments and hospital stays those blood tests confirmed that he has Sideroblastic Anaemia and that not getting his iron levels under control could be life threatening. Over the next few years Bryan has been on so much medication to try to control his iron and get her well and healthy enough for his transplant. Bryan has blood transfusions every 3 weeks, sometimes every 2.His body cannot deposit iron in the way other people can and getting him iron to the right level has been so challenging. Whilst he has been at school, she has had to have a continuous infusion of medication wearing a backpack to hold the pump 24 hours a day. We thought this had worked but it caused liver cirrhosis which meant her transplant was delayed.After one final medication review, Bryan has been on exjade which has done the job and is finally ready to have her bone marrow transplant and we as a family can begin to think about his being well and moving forward with his life. Bryan, and our family now face the biggest challenge yet. he will be in hospital for months, receive chemotherapy and will need to isolate from his siblings and family whilst he is in the hospital. After he recovers from his inpatient stay, he will need to go to hospital at least 3 times a week. It is going to take about a year – 18 months for Bryan to fully recover from this procedure.We are asking people to raise money through givingheartsmission.org to help with the cost of being in hospital for this long, funding meals for me, as his mom, whilst Bryan is an inpatient I only get 2 meals a day and need to pay for dinner. Paying for taxi costs if we need to get Bryan to hospital quickly as we are reliant upon hospital transport. Bryan is going to need lots of new pjs and bits to make his hospital stay as comfortable as possible.Any donations would be so gratefully received to help our family through this tricky time.Thank you so much,Kayleigh and Luke.